MSA SUPPORT GROUPS

EUROPE

http://www.emsa-sg.org/

http://www.rarediseasecommunities.org/en/community/multiple-system-atrophy



BELGIUM/ BENELUX

http://www.msa-ams.be


www.msa-benelux.org

www.parkinson-plus.org


DENMARK

http://www.msa-danmark.dk


FRANCE

http://asso.orpha.net/ARAMISE/cgi-bin/index.php?lng=fr

http://asso.orpha.net/ARAMISE/cgi-bin/index.php?lng=en


http://neuroligue.over-blog.com/article-journee-mondiale-a-m-s-lundi-03-octobre-2011-85661235.html



ITALY 



RUSSIA



UK

http://www.msatrust.org.uk or www.msatrust.org.uk

contact number: 020 7940 4666.

http://www.msatrust.org.uk/for-healthcare-professionals/patient-information/



Simon Roodhouse and his new companion - MSA

http://livingwithmsa.blogspot.com/



AFRICA


Nigeria:

http://fffoundation.org.ng



South Africa:


http://www.facebook.com/pages/MSA-Multiple-System-Atrophy-South-Africa/278167328865814?sk=wall

http://sonjasegriffels.blogspot.com/2011/08/ek-kan-in-die-bos-piepie.html

is Sonja’s Afrikaans blog 

http://www.msainsouthafricawithsonja.blogspot.com/

Sonja’s English blog about MSA;

Sonja’s blog: Strand, Western Cape, Zuid-Afrika



AMERICA


http://www.msaawareness.org/



BRASIL:

http://associacaomariavitoria.blogspot.com/2011/03/blog-post.html?spref=fb

Blog destinado a divulgação de informações que auxiliem pessoas portadores de doenças raras e que possam fomentar a organização da sociedade civil. "Só me sinto digna das minhas asas se eu as utilizar para fazer os outros voarem.

http://youtu.be/TGW1Ik8dsYE

http://www.facebook.com/pages/Atrofia-de-Múltiplos-Sistemas-AMS/136118773120290?sk=info


http://g1.globo.com/videos/distrito-federal/v/conheca-pessoas-que-lutam-por-mais-investimentos-publicos-no-tratamento-de-doencas-raras/1594442/#/Globo%20Esporte




CANADA:

Bob McInroy’s MSA-Ataxia: http://bobmcinroy.velcomweb.ca/bio.html

http://pub13.bravenet.com/forum/static/show.php?usernum=1069112295&frmid=3176&msgid=0

Brenda Paquet , Ottawa, Canada : http://msaonedayatatime.blogspot.com/

Karen Oslon Blog, Ottawa: http://www.karenolsonblog.com/

Paul Walsh, Toronto, Canada: http://livingwithmsa.com/


Lee Ann Labby Portland:

http://www.ohsu.edu/xd/about/news_events/news/2012/03-29-portlander-searches-for.cfm


CurePSP is a national organization serving the United States and Canada.  We coordinate many support groups that include MSA patients, due to the similarity of the disease to that of PSP and CBD. 

You can find a list of our support groups here: http://www.psp.org/mission/support/


USA

http://www.shy-drager.org/ 

The SDS/MSA Support Group was founded in 1989 by Dorothy Trainer-Kingsbury and Dr. David Robertson. The Shy-Drager Syndrome (SDS) Support Group is a growing legal entity devoted to fostering an ongoing relationship between patients, caregivers, their family members, and medical professionals. The Group hold annual meeting. Vera James & Judy Biedenharn are both board members.   

For more information please check our website www.shy-drager.org or facebook page: http://www.facebook.com/pages/Sdsmsa-Support-Group /160268974011093

http://groups.yahoo.com/group/shydrager"shydrager" - the online Multiple System Atrophy Support Group".   Pam Bowers have been a member there since 1996 and a moderator since 2000. To subscribe to the mail list, simply click on the hypertext on top and follow directions.

Ann and Dennis, Minneapolis, MN:

http://multiplesystematrophyandshy-drager.blogspot.com/

http://nolongeracaregiver.blogspot.com/

http://shivathecat.blogspot.com/


Ann Gerard, Retired College Professor, Westminster, MA  http://www.google.com/profiles/jahoward32

Arthur Wall, Orland Park, IL : http://aepwall.blogspot.com/

Dan Brooks:   http://www.wewillgoon.blogspot.com/

Dave Dennies: Cure Multiple System Atrophy Disease by:  http://david1000.weebly.com/

Debra Jones-Price:  http://christiansdontbite.blogspot.com/

Dennis and Lori Jakeway:  http://msa.dennisjakeway.comhttp://www.lifewithmsa.com/

Frank Cervone: http://www.hollywoodrepublican.net/2011/05/rushing-msa/

Gumbypoole aka Scott Poole, Winston-Salem, N.C. Living with a SNOW(WO)MAN: http://www.livingwithasnowman.blogspot.com/Jessica “Sami” Pennington: http://samibebe.livejournal.com/

Mary Mershanti, Tampa, Florida: Living while dying: http://mershanti.blogspot.com/

Mary Satterwith, Florida:  http://marysatterwhite.blog.com/

Steve & Fran: Multiple System Atrophy: I Have This Disease - It Doesn't Have Me: http://msajourney.blogspot.com/

Timothy P. Foley:  http://msainfo.tripod.com/


Movement Disorder Virtual University / WeMove: http://www.mdvu.org/library/disease/msa/

http://www.cmdg.org/Movement_/Parkinsons_Plus/MSA/msa.htm


Patricia Luper Story

http://www.journal-topics.com/lifestyles/article_c9443bde-b3d8-11e0-a630-0019bb30f31a.html



ASIA:




AUSTRALIE:


I noticed there was no contact point in Australia. We are interested in being available for people to contact.

Jill & Mac Keenan, 14 Hogan Street Wangaratta 3677  Victoria Australia

http://macandjill.createit.com.au/

John Cummings aka the World Wide Wombat,  Angesea, near Melbourne, Australia: http://surfcoastwombat.com/msa.htm

BEAUTYBABE - QUEENSLAND AUSTRALIA. http://hubpages.com/hub/MY-SILENT-BATTLE-WITH-MSA


***

contact us:

  africa@world-msa-day.org

  america@world-msa-day.org

  asia@world-msa-day.org

  australia@world-msa-day.org

  contact@world-msa-day.org

  europe@world-msa-day.org

  webmaster@world-msa-day.org


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